We provide aggregated counts, de-identified, limited, identified data through our Honest Broker services.
What does an end user need to request this service?
- Data Domains you need for research. Review our PCORNet’s data dictionary to determine what entities might be useful for your data.
- IRB approval as per data type :
- Aggregated counts : No IRB approval
- De-identified: Need Non HSR determination approval email from IRB (request from https://ecompliance.missouri.edu/my/irb/reviews/new and select human-subjects-research-determination)
- Limited / Identified : Full IRB approval with HIPAA waiver population selection criteria. Note: Researchers from MU and UMKC must go through MU IRB for limited or identified data.
- PI’s approval will be sent if requestor is not the PI
- Inclusion and Exclusion criteria
- Sign our data use agreement
Service Costs:
Anything mentioned in our data dictionary and if the service scope is within 3 hours of our Honest Broker will be free of charges. Above 3 hours and entities not in data dictionary will be charged on hourly basis. Check our fees at https://nextgenbmi.umsystem.edu/resources/
Timeline:
Our usual turn around time is 2-3 weeks. Depends on how quick we get all the entities needed per data type and work load of the research. Requests with additional data elements from source will take longer.
Disclaimer:
PHI’s requested must match the HIPAA waiver. Also, check the ‘Other Unique Identifiers’ field in HIPAA waiver if requesting for Visit Numbers/ FINs.
